Angie’s husband John was diagnosed with Alzheimer’s in 2008. This is their story.
I woke up mean. I knew it the moment my eyes opened that this had the beginnings of a bad day. John was already up so I had a few moments to try and chase the dark clouds away, but eventually I realized they had settled in. I would have to get up and make the best of it.
Continue reading “I woke up mean: An emotional story triggers another day of grieving” »
Holidays are normally a bit stressful and an illness can crank up the stress levels. That’s what happened to us this holiday season. Continue reading “Over the holidays, the little caregiver who could cries “Uncle!”” »
We are driving to an early morning doctor’s appointment. John is nervous because the appointment is with a new physician and he knows his memory is going to be tested. Getting dressed he asked me “what day is it” over and over again. I would answer as calmly as possible November 10, 2010, until I didn’t think I could stand it. I tried to have him look at the perpetual calendar that he is in charge of changing daily. Didn’t work. I had him look at his Day-Timer. Nada. Finally I handed him the newspaper and said, “Bring it with you.”
Two glowing smiles: Alyssa gets the car for her birthday.
Continue reading “It’s time for John to give up the keys…” »
I have traveled extensively throughout the United States and have often looked in wonder at the vastness of the mountains, forests, plains and deserts that early settlers had to navigate as they pushed west. I realize in the area of Alzheimer’s treatment my husband and I are pioneers. We are pushing forward, hoping for a better life.
John at an appointment for his clinical trial.
Continue reading “In the area of Alzheimer’s treatment my husband and I are pioneers!” »
I recently found myself overwhelmed by paperwork. I had scrambled to get benefits from Social Security and long term disability insurers. I thought I was doing pretty well until an insurance company sent me a letter saying that they had overpaid us by more than $2,000! Luckily John’s lifelong habit of making copies of checks eventually allowed me to verify this debt. However, it took me three days of combing through every box, stack of paper, file drawer, back pack and briefcase to find all the file copies of those deposited checks. Once I had them in chronological order, I saw immediately that yes, they had indeed overpaid us. It taught me a lesson, actually two.
Filing system BEFORE
Filing system AFTER
Continue reading “The paper trail can be daunting!” »