Bill, chapter CEO

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Think It Over…

While the Alzheimer’s Association is proud be to the largest private, non-profit funder of Alzheimer’s research, most basic science in the U.S. is funded through the National Institutes of Health.

Currently, the NIH funds about $6 billion in cancer science, $5 billion in heart disease research and a little over $3 billion in HIV/ Aids science. The Feds provide just under $500 million for Alzheimer’s research. I work for the Alzheimer’s Association and I have lost three family members to Alzheimer’s; I’m biased, but I think these numbers are out of whack.

It’s not that I begrudge these important public health issues a nickel. I’m delighted death rates from cancer, heart disease and HIV are bending downward. But $500 million for Alzheimer’s research just won’t alter the future fast enough for our children or grandchildren. This level of funding will assure that nearly half of today’s Boomers will spend the last years of their lives in the fog of Alzheimer’s.

I take this spending allocation as an expression of public focus. I ask myself, why this huge discrepancy? I think some of it is an unspoken cost-benefit analysis that says, “these people are about done anyway and society needn’t spend huge dollars on this cohort.” Many people still think of Alzheimer’s as normal aging and the medical community often doesn’t help. Over half of the more than 5 million Americans with Alzheimer’s will never be diagnosed. I frequently run into people who tell me that mom didn’t have Alzheimer’s, “she had dementia.” If you don’t think Mom had Alzheimer’s, are you going to care about Alzheimer’s research funding levels?

Some of the problem is stigma. It’s one thing to note that your backhand isn’t what it once was; it’s a very different thing to say you don’t think as well as you used to. We hum along on what is between our ears and when that is compromised, it has a whole different meaning to our future. It scares us, and it doesn’t help that there are no survivors showing up at Alzheimer’s fundraisers.

We must and will do better. It’s a matter of how fast we get to it. This Spring, the Association will mount a new public awareness campaign to help change the conversation. Let us know what you think and most importantly, share the message with your community.

Wm H. Fisher, wfisher@alz.org

When It’s On Your Mind, It’s On eBay – Keeping It Real for My Mom

September is World Alzheimer’s Month and eBay is joining the fight! eBay is supporting our efforts by hosting a celebrity charity auction online. They will also be donating to the Alzheimer’s Association through their “Give at Checkout” program and will be supporting a $5,000 Tweet Challenge Match. eBay employee Margaret Millett is a wonderful advocate for the Alzheimer’s cause and played a huge roll in getting eBay involved this year. Her hard work and dedication is a great example of how one person can make a big difference. Margaret was kind of enough to share this blog about her mother’s journey with Alzheimer’s and the role eBay has played along the way.

When It’s On Your Mind, It’s on eBay – Keeping it Real for My Mom

By Margaret Millett

It was a remarkable occurrence that brought me to eBay at a crossroads in my life in 2008. When eBay initially contacted me about joining the company, I was not that interested in moving to California. Truth be told, I was living in Ireland and looking for a new job. Continue reading “When It’s On Your Mind, It’s On eBay – Keeping It Real for My Mom” »

A reflection on Dad’s passing: A difficult road was made a little easier with support

I shared with you recently that my father had, among other issues, Alzheimer’s disease. His journey came to an inglorious end in late March after we had moved him to a nursing home. He was there only 12 days when I got the call from the nurse at the Iowa facility saying that while she could be wrong, experience told her he was dying. Three hours later, with his 90 year old wife at his side, he indeed succumbed.

It was a whirlwind in the last months. His congestive heart failure made him weak and he stayed in bed for most of most days. His dementia made him confused and often uncooperative. My sister and I flew home just two weeks prior to his death to visit the prospective nursing home and assess my mom’s sense of readiness. At this point, he was beginning to have accidents of the bowel and while the four of us scrambled to clean him up, I knew I would leave in a couple of days and my mother would be left – as she had been – alone to cope. Continue reading “A reflection on Dad’s passing: A difficult road was made a little easier with support” »

Dad has Alzheimer’s

I have shared before that my maternal grandmother and my wife’s mom were lost to Alzheimer’s. We lost my grandmother in a time when the professionals and family said she was “senile.” My mother-in-law lived independently until she was 92 and died at 99 – sadly, a very typical case

Now my dad has Alzheimer’s (enough of this!). I’m half way across the country and getting my own personal case study in long distance engagement, how the health care system deals with our condition, what’s different in rural America, why people might not diagnose Alzheimer’s and how a different approach could save the system money. Continue reading “Dad has Alzheimer’s” »

Think It Over…Alzheimer’s Association CEO Celebrates 25 years of service

Over twenty years ago, we put together a recognition breakfast for long time Alzheimer’s champion Senator Henry Mello. Our then Board President Tim Millar recognized that Senator Mello “cared about Alzheimer’s years before my father was diagnosed,” and thanked him for the State programs that addressed Alzheimer’s – programs very much under the budget gun today. Continue reading “Think It Over…Alzheimer’s Association CEO Celebrates 25 years of service” »

Walk to End Alzheimer’s 2011 – some reflections

We are just wrapping up our “marching season,” with Walks to End Alzheimer’s from Fresno to Redding. I was in San Francisco, Sacramento, San Jose and Redding. I love these events for many reasons – the positive energy, the diversity, the sense of engagement, the awareness, the homemade signs and team shirts… oh, yeah and the money. I would be less than candid if I didn’t acknowledge that the Walks generate about 20 percent of our budget and it’s key to our ability to do what we do.

I meet strangers and I thank them for coming out to support the cause and the darndest thing happens… Continue reading “Walk to End Alzheimer’s 2011 – some reflections” »

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