Newsletter

Alzheimer’s Association of Northern California and Northern Nevada Newsletter

Alzheimer’s Changes the American Dream

Phuong Quach gets debriefed on the issues at the Advocacy Forum

Phuong Quach gets debriefed on the issues at the Advocacy Forum

When we first came to the United States as refugees from Vietnam, my father worked in a cereal factory with a starting wage of $3.75 per hour. Soon after, my mother also started work in a factory. With long hard hours of labor and determination, they were focused on the American Dream. Over the years, we really did become the poster family for the American Dream.

My parents were able to buy a home and a new minivan. All four of their children went to private liberal arts colleges, received advanced degrees and now have good careers. We made it and truly became Americans.

Continue reading “Alzheimer’s Changes the American Dream” »

On a Personal Note: Heather Deming

“My name is Heather Deming and my husband Bill and I feel privileged to share our story with you. We are learning to increase our understanding of this baffling disorder with the goal that together, we will all make strides in caring for our loved ones and ourselves.

Alzheimer’s takes its toll on parents, siblings, spouses, friends. Our roles vary according to our relationships.

Bill and I met in 1981 having both been married before. Together, we had five adult children and in the years ahead would add six grandchildren. Perhaps, it would be helpful to share Bill’s life before I met him:

He was born in Yonkers, New York. After high school, he took a job in New York city described as “photographers aide.” This first job would guide the rest of his career. The photographer was Richard Avedon, the revolutionary photographer who redefined fashion photography as an art form.

For two years, Bill learned photography from someone who would soon be at the top of his field. Then the Korean War intervened and Bill chose to enlist in the Air Force. Fortunately, the Air Force recognized his potential skills and sent him to Boulder, Colorado for photography training, which morphed into high-altitude reconnaissance photography. Those skills took him to Japan and launching of the North Korean overflights. Continue reading “On a Personal Note: Heather Deming” »

On a Personal Note…(Emma)

Emma at the 2012 Memories in the Making Art and Wine Auction

Emma at the 2012 Memories in the Making Art and Wine Auction

High school senior Emma volunteers her time to facilitate Memories in the Making, an Alzheimer’s Association art therapy program. She recently spoke about her experience as a volunteer with the program at the annual Memories in the Making Art & Wine Auction in Mountain View.

“For an hour every Wednesday afternoon, my name is Amy. I reminded Linda, the director of Activities at Canyon House, the assisted living center at which I paint with Alzheimer’s patients on Wednesdays, every so often that my name is not, in fact, Amy. But at some point, I stopped reminding her. So what if she can’t remember my name? Neither can Frank, René, Mary, Virginia, Paul, or Mr. Green, who all diligently paint with me.

Kerry, who used to facilitate the Memories in the Making programs at Canyon House, constantly reminded me, “Everyone is an artist.” It was those four words that originally inspired me in the program. Even I – whose drawing of some insect yet to be identified pales next to my sister’s beautiful bumblebee – am an artist.

Continue reading “On a Personal Note…(Emma)” »

Alz Profile: Charles K. Kao, Nobel Prize Winner

On December 10, 2009, Mountain View, Calif. resident Charles K. Kao, Ph.D. received the Nobel Prize in Physics “for groundbreaking achievements concerning the transmission of light in fibers for optical communication.” But instead of presenting a traditional Nobel Lecture prior to accepting the award, Dr. Kao’s wife Gwen Kao took to the podium and presented the lecture on his behalf. Dr. Kao has Alzheimer’s disease.

In a Nobel documentary segment about Dr. Kao, Gwen says the biggest and most upsetting part of this journey has been the loss of conversation. “He has no more intellectual repartee,” she says. “And that’s what I miss.”

Dr. Kao’s loss of the ability to communicate is ironic as he was key to discovering technology that allows global communication: in 1966, he carefully calculated how to transmit light signals via optical glass fibers 5,000 times faster than ever before.

Continue reading “Alz Profile: Charles K. Kao, Nobel Prize Winner” »

Policy Watch: What your candidates need to know about Alzheimer’s legislation

In November we will once again cast our ballots for President and Congress. What are the major policy issues that affect Alzheimer’s families? Following is a summary of legislation that needs to be on your Federal candidate’s agenda:

THE NATIONAL ALZHEIMER’S PLAN

Synopsis: The National Alzheimer’s Project Act (NAPA), unanimously passed with full bipartisan support in Congress and signed into law by President Obama, authorized the process currently underway to develop a national Alzheimer’s plan. The Department of Health and Human Services outlined its timetable for the development of the national Alzheimer’s plan with the first draft targeted for mid-February and a final plan unveiled in late spring. View the framework here:

http://aspe.hhs.gov/daltcp/napa/Framework-Draft.pdf

Ask your candidate: How will you implement the bi-partisan National Alzheimer’s Plan that is being drafted?

Continue reading “Policy Watch: What your candidates need to know about Alzheimer’s legislation” »

On a Personal Note…Wah Ho Chan

Wah Ho Chan, living with Alzheimer's, speaks at the Walk to End Alzheimer's in Silicon Valley

I’ve been married to Martha for 30 years. We have two daughters who are now adults and a granddaughter who just started kindergarten.

I moved to the Bay Area because of my best friend from seventh grade David. He ended up here, and when I came to visit him, I decided to stay. We were going to make movies. We took film classes at De Anza College, and then I worked there, first as an assistant and later as a teacher. I got into the Stanford film program, became a cameraman and did that work for 30+ years.

About four years ago, my wife and daughters noticed something that seemed to be more than my usual forgetfulness. I couldn’t do simple math anymore and I couldn’t figure out how to put things together that I would have done in my sleep before. Continue reading “On a Personal Note…Wah Ho Chan” »

Copyright © 2012 Alzheimer's Association. All Rights Reserved.

Through this website you are able to link to other websites which are not under the control of the Alzheimer’s Association. We have no control over the nature, content and availability of those sites. The inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them.

Chapter Headquarters
Alzheimer's Association of Northern California and Northern Nevada
1060 La Avenida, Mountain View, CA 94043 Phone 650.962.8111

National Headquarters
Alzheimer's Association National Office 225 N. Michigan Ave., Fl. 17, Chicago, IL 60601 Alzheimers and Dementia Blog – Alzheimers Association of Northern California and Northern Nevada

Built on Notes Blog Core
Powered by WordPress