Tag advocate

Behind the scenes at the 25th Annual Alzheimer’s Association Advocacy Forum – Day 3

After two days of inspiration and education, advocates headed to Capitol Hill to meet with their respective legislators and ask for their continued support in the fight against Alzheimer’s.  Here’s how the meetings went for a few of the Northern California and Northern Nevada Chapter advocates:

View photos from the forum on Flickr and learn more about the sessions at alz.org/forum.

Behind the scenes at the 25th Annual Alzheimer’s Association Advocacy Forum – Day 2

How do you sum up a day full of inspirational speakers, informative sessions, networking, and policy in just over a minute? Find out below:

View photos from the forum on Flickr and learn more about the sessions at alz.org/forum.

 

Behind the scenes at the 25th Annual Alzheimer’s Association Advocacy Forum – Day 1

Over 900 Alzheimer’s advocates have gathered in Washington, D.C. for the 25th Annual Alzheimer’s Association Advocacy Forum. We have asked attendees from the Northern California and Northern Nevada Chapter to share their insights from the sessions they have attended. Here is what they had to say on Day 1:

View photos from the forum on Flickr and learn more about the sessions at alz.org/forum.

Volunteers Push for Legislative Change at California Advocacy Day 2013

SacramentoAdvocacyDay (142 of 39)The normally drab halls of the California State Capitol were sparkling with color on March 6 as 160 Californians, clad in bright purple sashes, descended on Sacramento for Alzheimer’s Advocacy Day 2013.

As family members and individuals affected with Alzheimer’s disease, the volunteer advocates met with elected representatives and key staffers to share the impact the disease has had on them, and advocate for policies to help the many Californians confronted with the disease.

Alzheimer’s Advocacy Day, an annual event in California, is an opportunity to connect with legislators on a personal level, and to educate them about the realities of Alzheimer’s and what the legislature can do to improve life for the nearly 600,000 Californians who have the disease. Continue reading “Volunteers Push for Legislative Change at California Advocacy Day 2013” »

On a Personal Note… (Lou Bordisso)

Two years ago, at the age of 56, my neurologist informed me that I had been diagnosed with Younger-onset Alzheimer’s disease. My diagnosis was both a shock and a relief in that it finally put a name to and made sense out of all the problems I was having at work and managing my personal affairs.

Lou Bordisso

Lou Bordisso (left), living with Alzheimer’s, advocates in Washington, DC during the Advocacy Forum.

My experience living with this diagnosis is similar to many living with Alzheimer’s. When first diagnosed, my life took an unexpected turn. My future plans, hopes and dreams were altered by a few short words from my medical provider. Abruptly, my life, as I had known it, and the plans I had for it, changed.

Suddenly, I was navigating life insurance policies, trusts, wills, financial and long-term care planning, early retirement, social security disability, state disability insurance, medical directives, and compromised health – all at the same time! It has been overwhelming and confounding. Continue reading “On a Personal Note… (Lou Bordisso)” »

Alzheimer’s Changes the American Dream

Phuong Quach gets debriefed on the issues at the Advocacy Forum

Phuong Quach gets debriefed on the issues at the Advocacy Forum

When we first came to the United States as refugees from Vietnam, my father worked in a cereal factory with a starting wage of $3.75 per hour. Soon after, my mother also started work in a factory. With long hard hours of labor and determination, they were focused on the American Dream. Over the years, we really did become the poster family for the American Dream.

My parents were able to buy a home and a new minivan. All four of their children went to private liberal arts colleges, received advanced degrees and now have good careers. We made it and truly became Americans.

Continue reading “Alzheimer’s Changes the American Dream” »

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