Tag caregivers

I’ve Just Been Diagnosed With Alzheimer’s. Can I Still Work?

buv006Due to an aging workforce, finding employees diagnosed with Alzheimer’s disease is becoming more common. While many people can remain at work in the early stages of the disease, each person’s situation is unique. Talk to your physician and caregiving team regarding how your current set of symptoms will impact your ability to work, and keep revisiting the conversation as your symptoms change. Depending on your particular job, you may need to transition out of work sooner than later, for example, if your job involves driving or utilizing skills that may be more challenging with Alzheimer’s.

If you are able to continue working, try to create a transition plan with your employer, perhaps reducing hours or taking a less demanding role. Educate your employer about the disease as you discuss your options, you may even want to bring a caregiver or advocate with you. You may find that your employer and even your Human Resources department may have had little training or exposure to the disease. Unfortunately, many companies that have stellar childcare benefits and support resources haven’t caught up with eldercare disease issues. Continue reading “I’ve Just Been Diagnosed With Alzheimer’s. Can I Still Work?” »

Hanging up the Keys

keysIf you have been diagnosed with Alzheimer’s disease, one of the many difficult decisions you will face is when to hang up your car keys. Driving is such a routine freedom and pleasure that for most people it is quite painful to think about losing that independence. But the disease impacts the concentration and quick reactions that safe driving requires, so needing to stop is inevitable. The question of driving – whether to continue and if so, for how long – needs to be evaluated as part of your ongoing health planning.

You’re likely to have conflicted thoughts about giving up driving, so acknowledge and share your feelings about it. Talk with your caregiver about how the driving decision should be made, balancing your desire for continued independence with the need for everyone’s safety. In the early stages of the disease, you may be able to simply transition your driving to be more limited, perhaps only driving familiar, short drives during the daytime. You could use a GPS tracking device to reduce a caregiver’s concerns. Continue reading “Hanging up the Keys” »

Behind the scenes at the 25th Annual Alzheimer’s Association Advocacy Forum – Day 3

After two days of inspiration and education, advocates headed to Capitol Hill to meet with their respective legislators and ask for their continued support in the fight against Alzheimer’s.  Here’s how the meetings went for a few of the Northern California and Northern Nevada Chapter advocates:

View photos from the forum on Flickr and learn more about the sessions at alz.org/forum.

Behind the scenes at the 25th Annual Alzheimer’s Association Advocacy Forum – Day 1

Over 900 Alzheimer’s advocates have gathered in Washington, D.C. for the 25th Annual Alzheimer’s Association Advocacy Forum. We have asked attendees from the Northern California and Northern Nevada Chapter to share their insights from the sessions they have attended. Here is what they had to say on Day 1:

View photos from the forum on Flickr and learn more about the sessions at alz.org/forum.

Delirium or Dementia – Do you know the difference?

What do we mean by delirium?

Also called the acute confusional state, delirium is a medical condition that results in confusion and other disruptions in thinking and behavior, including changes in perception, attention, mood and activity level. Individuals living with dementia are highly susceptible to delirium. Unfortunately, it can easily go unrecognized even by healthcare professionals because many symptoms are shared by delirium and dementia. Sudden changes in behavior, such as increased agitation or confusion in the late evening, may be labeled as “sundowning” and dismissed as the unfortunate natural progression of one’s dementia.

When is a change in behavior delirium and not part of dementia?

In dementia, changes in memory and intellect are slowly evident over months or years. Delirium is a more abrupt confusion, emerging over days or weeks, and represents a sudden change from the person’s previous course of dementia. Unlike the subtle decline of Alzheimer’s disease, the confusion of delirium fluctuates over the day, at times dramatically. Thinking becomes more disorganized, and maintaining a coherent conversation may not be possible. Alertness may vary from a “hyperalert” or easily startled state to drowsiness and lethargy. The hallmark separating delirium from underlying dementia is inattention. The individual simply cannot focus on one idea or task. Continue reading “Delirium or Dementia – Do you know the difference?” »

Resources for African American Individuals and Families

In recognition of Black History Month, I asked our African American Outreach Specialist Craig Wingate to talk about Alzheimer’s Association resources and information specifically for the African American community. Here is what he shared with me:

AfricanAmericanCoupleNot too many people know that African Americans are two times more likely to develop Alzheimer’s disease. African American readers are probably saying to themselves, “Oh great, another disease we’re more likely to get.” So what now? Now is the time to start having conversations about this debilitating and fatal disease that robs individuals of their cognitive abilities. So many families see the symptoms (i.e. Mom is repeatedly asking the same questions, Dad can’t seem to pay his bills anymore, Mrs. Jean just gave away her social security check to another telemarketer), but ignore them or label them as “senior moments.”

Continue reading “Resources for African American Individuals and Families” »

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