“I want to go home.” Many caregivers hear this from their loved one even when their loved one is sitting in the living room of the home they have lived in for many years. It also happens when there’s a change in environment or routine.
It’s upsetting to think your loved one no longer recognizes the environment around them, but this is part of the disease. The person may not believe they are in their home because they truly don’t recognize it. Or that person is likely not speaking literally but searching for the feeling of home – a sense of familiarity, security or comfort. So, what do you do in this situation? Continue reading “How to respond to “I want to go home!”” »
Two weekends ago when I was at Walk to End Alzheimer’s in Redding, I had the privilege of hearing Rhonda recite a poem written by her son about her husband’s Alzheimer’s disease. I found it inspiring and wanted to share with all of you!
My husband Fernando Rodriguez was diagnosed with early onset Alzheimer’s disease in 2005 at the age of 41. He passed away on December 23, 2011. The journey that we traveled with my husband during those six years was a learning experience. Our grandchildren learned to have an understanding of people who have a disability. Each was involved with the care of my husband until his death; the youngest being just two when his Papa passed and the oldest 16. Throughout this journey, my husband never lost his sense of humor even when it got so rough. He was an amazing man who loved to the fullest. He did not want us to be sad when he was taken, but to continue to loving and living life to the fullest. This is a poem written by my son Richard Velador that I read during Walk to End Alzheimer’s in Redding:
Stole Away Continue reading “Stole Away: A poingnant poem by a son for his Dad” »
In celebration of World Alzheimer’s Month in September, we’re highlighting Alzheimer’s stories from around the world. Today’s story comes from a caregiver in Santiago, Chile – Elena Muñoz Iván’s. She writes a beautiful blog about her mother’s struggle with Alzheimer’s and about people’s perception of honesty and truth. You can read her original post in Spanish here: Corporacion Alzheimer Chile: A todos ustedes, admirables cuidadores, los que conozco a traves de mi papá y mi hermana.
When I was a little girl, I was told about elves, guardian angels, Mr. and Mrs. Claus, fathers and mothers that were capable of protecting us from any danger and a heaven where grandparents, brothers, sisters and everyone whom we loved and “were good” went when they died. Continue reading “World Alzheimer’s Month: A Look at Alzheimer’s Through Elena’s Eyes” »
In less than a month, thousands of people will gather in San Francisco for the Walk to End Alzheimer’s, so I’m in a frame of mind that is slightly off topic.
Sherrie, Alzheimer’s Advocate, Caregiver, and Walk to End Alzheimer’s participant
Therefore, this entry is not about something I just read regarding the latest drug that has promise or the one that failed. It’s not about hounding you to write another letter or make one more phone call to insist that lawmakers fund more research or vote for legislation that makes living with Alzheimer’s more bearable. Instead, this is about my mother.
It could be that because the Walk to End Alzheimer’s is just around the corner, my dreams of my mom – who died in 2000 and for whom I had cared for many long years – are more present. Continue reading “With Walk around the corner, dreams about Mom start to change” »