Tag early stage

Hanging up the Keys

keysIf you have been diagnosed with Alzheimer’s disease, one of the many difficult decisions you will face is when to hang up your car keys. Driving is such a routine freedom and pleasure that for most people it is quite painful to think about losing that independence. But the disease impacts the concentration and quick reactions that safe driving requires, so needing to stop is inevitable. The question of driving – whether to continue and if so, for how long – needs to be evaluated as part of your ongoing health planning.

You’re likely to have conflicted thoughts about giving up driving, so acknowledge and share your feelings about it. Talk with your caregiver about how the driving decision should be made, balancing your desire for continued independence with the need for everyone’s safety. In the early stages of the disease, you may be able to simply transition your driving to be more limited, perhaps only driving familiar, short drives during the daytime. You could use a GPS tracking device to reduce a caregiver’s concerns. Continue reading “Hanging up the Keys” »

On a Personal Note… (Lou Bordisso)

Two years ago, at the age of 56, my neurologist informed me that I had been diagnosed with Younger-onset Alzheimer’s disease. My diagnosis was both a shock and a relief in that it finally put a name to and made sense out of all the problems I was having at work and managing my personal affairs.

Lou Bordisso

Lou Bordisso (left), living with Alzheimer’s, advocates in Washington, DC during the Advocacy Forum.

My experience living with this diagnosis is similar to many living with Alzheimer’s. When first diagnosed, my life took an unexpected turn. My future plans, hopes and dreams were altered by a few short words from my medical provider. Abruptly, my life, as I had known it, and the plans I had for it, changed.

Suddenly, I was navigating life insurance policies, trusts, wills, financial and long-term care planning, early retirement, social security disability, state disability insurance, medical directives, and compromised health – all at the same time! It has been overwhelming and confounding. Continue reading “On a Personal Note… (Lou Bordisso)” »

On a Personal Note: Heather Deming

“My name is Heather Deming and my husband Bill and I feel privileged to share our story with you. We are learning to increase our understanding of this baffling disorder with the goal that together, we will all make strides in caring for our loved ones and ourselves.

Alzheimer’s takes its toll on parents, siblings, spouses, friends. Our roles vary according to our relationships.

Bill and I met in 1981 having both been married before. Together, we had five adult children and in the years ahead would add six grandchildren. Perhaps, it would be helpful to share Bill’s life before I met him:

He was born in Yonkers, New York. After high school, he took a job in New York city described as “photographers aide.” This first job would guide the rest of his career. The photographer was Richard Avedon, the revolutionary photographer who redefined fashion photography as an art form.

For two years, Bill learned photography from someone who would soon be at the top of his field. Then the Korean War intervened and Bill chose to enlist in the Air Force. Fortunately, the Air Force recognized his potential skills and sent him to Boulder, Colorado for photography training, which morphed into high-altitude reconnaissance photography. Those skills took him to Japan and launching of the North Korean overflights. Continue reading “On a Personal Note: Heather Deming” »

California Advocacy Day: rainy and inspiring!

It was a soggy morning in Sacramento, but more than 200 dedicated Alzheimer’s Association volunteer advocates still showed up in good spirits to the 2012 Advocacy Day at the State Capitol. Among them: people with early stage Alzheimer’s, family caregivers, healthcare professionals and other Alzheimer’s champions.

Following a light breakfast and overview of the day, we were welcomed to the Capitol by Senator Tom Berryhill who thanked everyone for their work as volunteers.

“What you’re doing up here today is very important because education of these legislators in that building is so necessary.”

Training for the group continued with an overview of “legislator meeting Dos and Don’ts” by Assemblymember Holly Mitchell.

“We work for you and that can be a one sided relationship unless you make it otherwise and reach out to us on a regular basis,” she said. “That’s your responsibility as Californians. I have a job to do and you have a job to do to make us informed of issues that are important to you.

Continue reading “California Advocacy Day: rainy and inspiring!” »

Recalibrate

 

A year or so ago, my aunt gave me a message from her husband. She told me that Uncle Dan had asked her to deliver to me a one word message: recalibrate. She asked if I knew what he meant. Yes, I knew. Not just the meaning of the word, but what he was trying to tell me.

Recalibrate.

At the time we were busy doing chores around my house and although I heard what she said, I didn’t want to concentrate on the message. It was just another thing to put on my ever growing to do list.

Recalibrate. Continue reading “Recalibrate” »

On a Personal Note…(Bobbie Johnson)

Bobbie Johnson at Walk to End Alzheimer’s

Bobbie Johnson at Walk to End Alzheimer’s

“My husband Coleman and I lived and raised our three children in Livermore, Calif. I had a wonderful career as a Registered Nurse. As part of that career I served several kinds of nursing functions. The last type of nursing was as a nurse in the intensive care unit of a trauma center at Eden Medical Center in Castro Valley. In this function, I was certified as a Neurological Nurse. This meant that I was responsible for the well being of people with brain injuries.

I had other exposure to Alzheimer’s disease with my mother-in-law and others. After I retired in 2001 I slowly began realizing that I was having memory problems. At first, we all attributed it to the normal aging process. However, I was having increased anxiety about this memory loss. When this became more difficult, I contacted my Kaiser doctor to seek some tools to deal with the anxiety. She sent me to Kaiser’s memory clinic in Walnut Creek, Calif.

After the initial screening, I was given a diagnosis of Alzheimer’s disease. Continue reading “On a Personal Note…(Bobbie Johnson)” »

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